Celebrity makeup artist and hair stylist Crystal Kouri-Reynafarje says she was overwhelmed by anxiety when doctors put her son on her chest for the very first time in the delivery room.
Eventually, after a long, hard labor and delivery, she discovered her baby boy was born with Treacher Collins syndrome. Reynafarje told Voyage LA:
Complete hysteria set in. I remember apologizing to my husband thinking that I had done something wrong. Was I too old?
Why would the universe/God punish my child? Why would the universe/God allow this child to be born into such cruel emotional circumstances and medical hardships?
Working in the entertainment industry, Reynafarje admits that she completely “shut down” because she was concerned about acceptance and people bullying her son.
Yet instead of sheltering the boy, she told Yahoo it was important to take PJ out into the community, so Reynafarje started a social media page for her son, who she says is happily unaware of his cosmetic deformities.
However, she wasn’t prepared for the vicious online bullying that ensued last month.
Watch the video below:
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Warning ⚠️ sexual and violent content. (Full video link in bio) • • This was sent to me and many other special needs parents and children by a group of bullies • • I’ve spent days trying to process this and trying to figure out how to handle it. I have exhausted every avenue. I have called the police and filed a “tip” on FBI.gov. I have reported their accounts to Instagram, yet their accounts are still active. • • This isn’t general bullying!! Sadly, I’ve grown completely oblivious to the usual rude and hurtful comments. BUT THIS IS NOT BULLYING – ITS ON ANOTHER LEVEL. Why are threats to kill children not taken seriously? • • Yes, 99% chance that they are just internet trolls with no agenda to carry out their terrorist threats…. but it’s 1% that scares me. • • With the level of violence in today’s society, can we really afford to be dismissive? • • #choosekind #bekind #kindiscool #differentiscool #scarsarecool #treachercollinssyndrome #treachercollins #babywithtcs #facialdifference #childrenwithfacialdifferences #selfacceptance #selflove #stopbullying #specialneeds #specialneedschildren #specialneedsbully #pjsplayhouse
Reynafarje told Yahoo:
“We get bullying types of comments all the time — rude, insensitive, hurtful comments, like, ‘That’s an ugly kid.’ That’s fine with me. I don’t care. I brush it off all the time.”
But the deliberately cruel insults and threats from a group of online bullies against her 1-year-old hit hard.
Reynafarje reported the alarming message to police and an FBI tip page but says the incident was dismissed. She wrote in the video’s caption:
I have been told that they will only investigate when specific threats are made. So threats against children in general are dismissed?
According to Instagram’s community guidelines, the site removes content that contains threats or hate speech. As reported by CNN, Instagram says it will now detect bullying in posts.
Harassment such as attacks will be sent to the community operations team for review.