Eleven-month-old Phoenix was born with a heart defect called double outlet right ventricle (DORV).

Her mom, Monique Goldring, explained that she didn’t know about her daughter’s heart defect until hours after she was born:

I gave birth via C-Section on August 25, 2018 at 8:45 p.m. After Phoenix spent a few hours with me in my room after recovery, our nurse took her to the nursery for her routine checkup. She said that she would return in 5-10 minutes, but that turned into 20-30 minutes. When she finally returned, she informed me that Phoenix’s oxygen saturations were low and a heart murmur was detected.

As CNN reports, at 2 months old, Phoenix underwent two life-saving, palliative surgeries. One of the procedures was to put a shunt in her heart.

Then at 7 months old, Phoenix’s nose began to bleed. She turned blue and stopped breathing as her mom rushed her to the hospital.

The mom recalled the terrifying moment to WJLA:

“She was blue. I shook her face and lifted her arm up, it went limp.”

Phoenix had gone into sudden cardiac arrest. As Goldring told CNN, “I knew that she was gone.”

After doctors were able to revive the baby girl, she was put on life support having suffered significant brain damage. Goldring said after a month of seeing her daughter hooked up to her ventilator, she decided it was time to remove her daughter from life support, noting how “tired” her little girl looked.

And that’s when Goldring and Phoenix’s doctors witnessed a miracle.

Medical professionals told Goldring that it would take about six hours after Phoenix was removed from the ventilator; that was in April:

“From that point on, she just continued to thrive.”

Roughly a month after being taken off life support, Goldring was able to take Phoenix home. However, as CNN reports, that doesn’t mean the 11-month-old is out of the woods just yet.

As Goldring told CNN, doctors have decided to forego the remaining surgeries because it could kill Phoenix, as could the shunt in her heart if she outgrows it. The mother hopes to find a surgeon who will be willing to attempt the surgeries that will reroute blood flow to the baby’s heart:

“That’s kind of hard for a mother (to hear). The longer she’s here with me, the more difficult it gets for me.”

But for now, Goldring says she’s staying focused on all of the milestones her miracle continues to hit. Miracles that she never thought she would have a chance to celebrate, like seeing Phoenix’s first tooth come in and celebrating her first birthday.

MIRACLE BABY! Phoenix was taken off life support earlier this year with only six hours left to live. A few seconds…

Posted by Caroline Patrickis on Tuesday, August 6, 2019

Goldring told CNN:

“I still have my baby with me. I didn’t think I would be able to see that milestone.”

She continued:

“Falling apart about it is not going to change the circumstances. She’s clearly not falling apart about it, so I get my strength from her daily. […] “I’m just elated. I don’t know what the future is, but I’m excited for what’s to come.”

A GoFundMe has since been set up to help Goldring with Phoenix’s medical expenses.

But as far as celebrating her first birthday, Goldring says she’s going to keep the party as normal as possible with a cake, food, face painting, and a house full of supportive and loving friends and family.

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Miracle Baby Gets Set to Celebrate First Birthday After She Survives Being Taken off Life Support

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