Rosie

Jason Kneen knows what it’s like to have a child with Down syndrome. Now, he wants to help other parents understand how much joy his daughter has brought to their family.

As Mamamia reports, the U.K. dad recently took to Twitter to answer the question, “My child has Down’s Syndrome, what should I expect?”

To which he simply posted a photo of his 4-year-old daughter, Rosie, smiling and wrote, “This. 100 percent this.”

Jason continued by discussing his own journey as a parent of a child with special needs. He admitted that, like other parents, he was initially overwhelmed and didn’t handle things well:

I was totally NOT ready for a child like Rosie. It was a shock when she was born and I’m ashamed to say I didn’t take it well initially.

However, he blamed some of that bad reaction on the way we talk about Down syndrome to parents, with a focus on the negative and the problems they should be prepared for:

Part of that was the matter-of-fact process that happens where you’re bombarded with documentation and booklets and basically “manuals” on “what’s wrong and going to go wrong with your child.”

Hearing that your child’s future “has already been predicted and mapped out” was especially difficult to accept. And Jason instinctively rebelled against such thinking.

“All children are different — how can ANYONE predict their future?” he wrote.

That was followed by the realization that there is much more to a child than developmental delays:

Quickly I realized that ANY child can be slow to talk; slow to walk; have learning difficulties, and ANY child can be brilliant and wonderful and amazing.

For Jason, the pivotal moment came at Christmas 2017 when Rosie had to be hospitalized for bronchiolitis that turned into pneumonia. This wasn’t her first time in the hospital, but this time, Rosie’s mother couldn’t stay with her because they had a newborn baby at home.

So it fell to Jason to stay at the hospital with his daughter through Christmas and New Year’s. That’s when he really bonded with his daughter. He wrote:

Rosie I and became thick as thieves over that time and watched Moana together many times and EVERY SINGLE DAY […] Rosie was so brave, and so strong.

The dad was impressed at the way his little girl was able to “power through” the experience despite the shots and tests and tubes.

“She was amazing and SO brave,” he wrote.

Eventually, she got better and was able to go back home. For contrast, Jason posted a photo of the family together this past Christmas.

“A year later and we had our Christmas at home and together and she continues to enjoy life, every day, and reminds us and ME how fun it all is,” he wrote.

Jason’s love letter to his daughter resulted in thousands of shares and prompted others to tell him how much they loved his story.

Rosie’s love for “Moana” even got her a special tweet from Dwayne “The Rock” Johnson.

Jason thanked everyone for the big response to his post and said he’s touched by the outpouring of love and support. And for the man who offered to “cure” Rosie’s condition, the dad had a simple reply:

“There’s nothing wrong with her that needs curing — she’s completely perfect.”

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6 Replies to “Dad of Daughter With Down Syndrome Tells Parents What They Can Expect: ‘She’s Completely Perfect’”

  • Bridget Vaughn 1 year ago

    She is so beautiful

  • Mary 1 year ago

    This is a beautiful child. I believe anyone who has the privilege of having a downs child is blessed by God.

  • sm 1 year ago

    This is what we need to see more-parents and children who take Down Syndrome as virtually any other anomaly with which a child can have and deal with for life. They are beautiful-spirited children from all I’ve seen. Kudos! – to Rosie and her family.

  • Lance Merlin 1 year ago

    Lovely girl. Great dad.

  • bob 1 year ago

    God bless people like him. Sure there are challenges but there are more rewards. Way to go dad

  • Helene 1 year ago

    I worked with many down syndrom kids and they are so lovable. On mother told me her daughter was the one she knew was going to heaven to be an angel. I never met a Down syndrome. Hill who was mean, they were all wonderful.

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